Informed Consent in Predictive Genetic Testing

Informed Consent in Predictive Genetic Testing
Author :
Publisher : Springer
Total Pages : 232
Release :
ISBN-10 : 9783319174167
ISBN-13 : 3319174169
Rating : 4/5 (169 Downloads)

Book Synopsis Informed Consent in Predictive Genetic Testing by : Jessica Minor

Download or read book Informed Consent in Predictive Genetic Testing written by Jessica Minor and published by Springer. This book was released on 2015-06-15 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource. Included in the coverage: The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness. A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.


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